August 2011
9 posts
Fibromyalgia Confessions: #Ninety-Seven: →
fibromyalgiaconfessions:
What hurts more than even the worst of the physical pain? When people who should understand *because they have chronic pain too* say to you: “You’d feel better if you just got out of the house” (into 100-degree weather, when everything that holds you upright hurts) or “maybe it wouldn’t be so bad…
My mother has sciatica, and thinks she knows how I feel. I tell her my...
I Take My Waffles With A Side Of Pain... And... →
fibrowaffles:
When I was younger I’m not sure I ever even used the word “fatigue”. If I was tired, I was tired and that was that. Body tired? I’m tired. Head tired? I’m tired. No need to bring fancy words into it, and by fancy I apparently mean “more than one syllable”.
Unsurprisingly (lots of syllables…
#Ninety-Three:
fibromyalgiaconfessions:
Why is it that when I say I don’t feel like doing something I am nagged to the point of feeling useless. I don’t have the energy, I don’t have the strength, I don’t have the concentration or focus, I’m just not able. I have fibromyalgia; what can I do to make someone understand?
This confession was submitted anonymously
Just when I learned the rules...
The only crummy thing about working with kids is the germs. Now I understand that “cooties” aren’t some make-believe thing invented by children to weird each other out. Cooties are real. And kids are crawling with them.
“Before” I would get sick for a few days, often work the entire time, and bounce back rather quickly. “Now” a mere cold puts me down for...
July 2011
28 posts
#Six:
fibromyalgiaconfessions:
When I hear non-chronically-ill people complaining about small things like their back hurting or having a headache, I get mad. I want to yell at them and tell them to suck it up.
My sister-in-law whines about every little thing. She got a tiny scratch on her foot and announced loudly to the whole household “I need a band-aid before I bleed all over the...
#Twenty:
fibromyalgiaconfessions:
If my husband ever left me because things just got to be too much to deal with. I wouldn’t be mad, and I wouldn’t think any less of him. I’d understand and in a way I’d be happy for him because he would finally get a chance to have a normal life.
“Defeat only happens when you make the decision to stop trying. Because...”
– Ken Evoy (via crohnsandarthritis)
#Two:
fibromyalgiaconfessions:
When you start something with, “I know you have Fibromyalgia but…” you are either about to ask me to do something you know will probably be difficult for me to do or about to belittle my illness in some way. Basically what I’m hearing is: “I know you have Fibromyalgia and I don’t care.
New Fibromyalgia blog!!!
wieldingwordsandsmiles:
Remember that idea I had about the Fibromyalgia confessions? Well, I’ve started it!
www.fibromyalgiaconfessions.tumblr.com
Go, read, and please follow!
Also, it’d be really great if you guys could reblog or promote this! I’d really like to get this to more of our fellow fibro sufferers! <3
6 tags
The Contingency Plan
Fibro doesn’t always go into remission. For some people, they continue to deteriorate and must face living in that hell ‘till god knows when. Am I the only one with a contingency plan? A plan for ‘what if there’s no remission’?
In many ways I depend on you - people who are not... →
chroniccurve:
“…I need you to visit me when I am too sick to go out. Sometimes I need you to help me with the shopping, cooking or cleaning. I may need you to take me to the doctor, or to the store. You are my link to normalcy of life. You can help me to keep in touch with the parts of my life that I miss and fully intend to undertake again, just as soon as I am able.” A letter to those without...
4 tags
What is Fibromyalgia? Pt 2
The second in my series was going to be a follow-up to part one; clinical trials and research documentation into the amino acids that support the production of substance P, and how it has been found that some FMS patients are deficient in key amino acids. But then I saw a post from a sufferer about medicinal marijuana, and how their loved ones are telling them medicinal marijuana is not the way to...
Drugs and fibro
mehtehwhatver:
Im starting to hate the fucking drugs im on to fight this pain. Maybe they’re doing some good, but is it really worth the weird feelings they give me sometimes. Some of the people i love say that medical marijuana isn’t the right way to go, but are these three drugs any better than that? Either way, id rather not have to use any at all.
I think my next “What is...
a day and a half after eating junk food and the...
ashley-cat-healthy:
If you have Fibro i would recommend asking a doc about a change in eating habits. It really does help if you stick with it…
I have a huge problem with gluten. When I “glutenize” myself my pain and fatigue levels sky rocket. It can take a few days before I start to recover and start to feel human again. I can eat junk food, in moderation, as long as it...
There's a Reason I Never Had Kids
~ Sometimes I dislike this job; it’s too bad I can’t ignore intake sheets and remain ignorant as to the reasons for apprehension. I mean, who in their right mind would get involved with, and have a baby with, someone who’s on the Child Abuse Registry? AND who in their right mind would rather lose their newborn than leave the loser? I guess the answer is right there. The parent...
~Cor Leonis~: Dictionaries are your friends. Use... →
leoncillo:
Chronic
Of long duration and slow progression. Illnesses that are chronic develop slowly over time, and do not end. Symptoms may be continual or intermittent, but the patient usually has the condition for life. http://medical-dictionary.thefreedictionary.com/chronic
Fibromyalgia
What the fuck?
aliminium:
We who have fibromyalgia, are not getting better, because we’re not trying? Pushing through the pain doesn’t help, and there are no real ways to ‘try and get better’. We just have to wait it out, but we’ll always have it.
I hate when ppl say “you just have to work through the pain. I do it all the time.” Well good for fucking you. How’s this: Let me take a sledge...
5 tags
Brain Fog...
Ever have one of those days? Where no matter how hard you try, you just can not keep your head together. Today started out bad; really bad. Got worse. Now it’s time to go lie down before I do some real damage.
I received a message from someone today, asking if I was a fibro girl. Part of my response to her was to say she must be one as well. Duh. I already knew that. I read her blog earlier...
Why do I do this?
Today is such a bad day. I could barely get out of bed this morning; the BF nearly had to drag me out. I’ve been struggling all day to NOT go back to bed. Now after blogging all morning, my biceps, pelvis, thighs and back are killing me! Partly my fault; I’ve been slacking on the diet again, and forgetting my meds. Indulging in glutenized foods also hasn’t helped me much. I...
5 tags
What is Fibromyalgia? Pt 1
I get this question a lot. It’s hard enough to get people to believe you when your condition and pain are completely invisible; it becomes even harder to convince people your condition is real when you have to tell them that no one fully understands what FMS really is. My mother’s husband has already told me he doesn’t believe there’s anything wrong with me, and I know...
6 tags
The Greatest Addiction in the World
Today was my first adjustment with the new chiro. In our first meeting he told me he could correct my scoliosis. Which is bunk. Only surgery can correct a spine that has grown curved, as the bone deforms and all the surrounding tissue is affected. He claims to have reduced symptoms, and at times cured altogether, FMS. He also claims to have reduced the symptoms and progression of stuff like MS...
Interruption
I wound up not going to the party. I tried to “recover”, doing what I know can help. I stayed cool, I relaxed, I ate small amounts (mostly protein). I probably should have napped. We had a great time in the lake yesterday. Felon finally learned what his life jacket was for, and played with us (attacked us) in the water. By the time I got out of the water I was feeling light-headed and...
9 tags
Obligation
I feel gross today. Dizzy, nauseous, a little foggy. And Madam Gougeon (the matriarch of my mom-in-law’s fam) has a birthday party today. I know I don’t have to go, my in-laws are great, but it’s their gracious nature that compels me to go. I’m actually more concerned about Madam Gougeon than I am about my own state. She’ll most likely feel guilty that I felt I needed...
